Living Well, Dying Well

In December of 2014, my father died after five years with Parkinson’s and Dementia, and breaking his hip, then being tortured by a grossly incompetent medical staff at Kaiser Permanente’s hospital in Panorama City, California. I won’t go into detail but it was a real trip to hell and the staff were the demons running it.

My dad died on December 21st, his young dog died without warning four days later on Christmas Day (also from a brain problem, ironically), leaving my mother completely alone. Then, as if all that weren’t bad enough, her house was burglarized. She not only felt sad in her empty house, but afraid, too. 

As I was dealing with the burglary, my father’s sister in Belfast, Northern Ireland, was found dead on her bedroom floor. She had been dead for four months but nobody noticed because she was an agoraphobic recluse. She lived badly and died badly. A tragic end to a tragic life. More irony (or something more) – she died within a week of my father, even though she was twelve years younger than him, and she didn’t even know he had passed. It was as if my father’s soul, free of that broken body, found her and said, “Come with me, sis. This is no life for anyone.” Maybe his dog died to be reunited with him, too.

We will all die, and usually badly, in physical terms, from some diabolical, incurable (is there any other kind) disease or combination of them. This is the inherent courage of living – knowing the end will come, but waking up, getting cleaned and dressed, smiling at strangers, and making the most of every day anyway. We all deserve a medal. There is valor in just staying positive and living life knowing the end will come, whether or not we believe in heaven and the continuation of the soul.

My father’s miserable last month of life, made infinitely more miserable by the ghoulish staff at Panorama City’s Kaiser Permanente hospital (with a few rare exceptions), would have been completely hellish except for one moment at the end, after the morphine drip that would end his life had begun, when somehow, he opened his eyes and searched for me in the room full of friends and family. A friend said, “Mark, he wants you.” I was sitting in the corner with my face in my hands, crushed that I wasn’t able to save him. I looked up and saw him reaching for me. I rushed to him and held his hand. He couldn’t speak because his throat was ravaged by numerous botched tube placements. (Another thing Kaiser stole was my father’s right to say goodbye.) He pursed his lips, pulled me close, and gave me the last kiss he would ever be able to give me. I hugged him and told him I loved him, that it was okay to go, that I would take care of mom, and thanked him for all he had done for me. I asked if he understood and he nodded yes. I thank God for that moment now, and am still baffled at how he was able to reach through his brain diseases and all the drugs flooding through his system to give me that moment. A golden moment if ever there was one. I have despaired greatly since his death, about how he died, so without that the despair would have been infinitely worse.

Which brings me to my point – dying well. That moment said everything there was to say about my father. He had a rough upbringing in Belfast, Northern Ireland, with loveless parents, crushing poverty, and almost daily fistfights, but he never complained. He came to America and started a business that flourished for 35 years while others rose and fell around him. He lost his stomach to cancer at 45 and was cut down from 200 to 150 pounds. And again, he never complained. He never complained or made the slightest whimper in the hospital despite his hip and femur being broken in four places, despite his throat being so dry his tongue cracked open, despite the hospital staff making every mistake it was possible to make out of a combination of incompetence and heartlessness. And he didn’t complain as morphine ended his life. Instead, he reached for me and gave me a kiss.

I thought of my dad when the actor Gene Wilder died recently. He was asked in an interview why he didn’t act anymore during his final decades. He was sent scripts constantly so demand for his talent was still there. He said he didn’t like all the cussing and vulgarity. Decency and integrity like that is almost non-existent in Hollywood, where money and attention are usually the only factors considered when making a decision.

Gene Wilder suffered with Alzheimer’s Disease during his final years. He said he rarely went out because children still recognized him as Willy Wonka and he had trouble smiling so he didn’t want to make anyone sad. He didn’t get bitter and hostile because life was dealing him a terrible hand. He was good, sweet and kind to the very end despite his troubles. He lived well and died well.

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While writing this, a scene from the Robin Williams movie Patch Adams came to mind. A patient (played by Peter Coyote) was very angry and bitter that he was dying young. Patch was determined to help him make the transition more peacefully. Here’s the scene:

When I was in my early twenties, I climbed over the wall of a cemetery one night and sat in a freshly-dug grave with a Ouija board and candles, trying to summon up something, anything, that would prove to me that there was something beyond this life. I had been told that Ouija boards could be dangerous portals for demons, but I didn’t care. My faith in God had been destroyed by atheistic philosophers like Bertrand Russell and I desperately needed to know if we were immortal or worm food. I chose that night for this “seance” because it was Friday the 13th, and not only a full moon, but a blue moon, too. I figured the timing couldn’t be better. But nothing happened. I sat in that hole in the ground in dead silence until I felt enough like an idiot to pack it up and go home.

But maybe something did happen. My brother had a troubled life filled with drugs and prison and died of an overdose at 37. My mother had breast cancer twice. My life wasn’t exactly easy, either. Maybe demons stay below the radar and do their damage instead of making flashy displays like they do in movies. Life doesn’t feel like nothing to me. It feels like a mystery. It feels like a struggle between good and evil. I can feel the devil push me one way and God push me another. We can write it off as imagination or believe in something larger than ourselves. It’s always our choice.

But no matter what the ultimate truth is about the afterlife, there’s one thing I know – life wasn’t given to us to spend it in misery and sorrow. It just feels right to be happy, generous, kind, loving. I don’t understand people who spend their one, short life buried in greed, anger and/or hatred. Such a waste. Kind of like having a sumptuous meal prepared by the world’s greatest chef then pouring ketchup all over it.

Timothy Leary said dying is one of the greatest things any of us will ever have the chance to do. He was right. How we die is perhaps the largest reflection of who we truly are, beneath all the surface behavior and easy words. Depending on how we live, we will die with integrity or despair. *

My goal is to have the same smile on my face on my final day as I do today. Death shouldn’t extinguish the light within us. It already takes enough.

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  • Erik Erikson’s stages of psycho-social development.

 

11 thoughts on “Living Well, Dying Well

  1. I really appreciated this thoughtful and heartfelt post. I’m saddened that the hospital experience was so awful when it could have been much more helpful/peaceful for all. Thanks for posting this wonderful essay.

    Liked by 1 person

  2. Your father sounds like a wonderful person who achieved a lot in his life! I also remember one of the last moments I had with my aunt, who died when I was 13. We were staying at her apartment for a few weeks because she had cancer. On the day she came back from the hospital, my mom went out to buy something, and I had a half-hour alone with her. Somehow, that short time has always meant a lot to me. It’s the last time we spent together outside of a hospital.

    Liked by 1 person

    • Thanks, Kathrin. I thought of a line by Kahlil Gibran when I read your response (from The Prophet) – “Ever has it been that love knows not its own depth until the hour of separation.” I’ve always found that to be true, whether saying goodbye at an airport or train station, or saying goodbye in a hospital. Thanks for sharing your story with me, my friend.

      Liked by 1 person

  3. I know everyone goes through sadness and anger in their life. And it is hard to focus on the good when things go wrong. We all go through it. But I would rather focus on the good despite what I have been through because what are we if not an example for our fellow mankind and mostly, our children.

    Liked by 1 person

    • I just saw this message today, Alison. So sorry for the slow response. I wouldn’t even attempt to give an opinion on your situation, but I do know that there’s a time to hold on – if the problem is fixable and there is enough quality of life to try to pull through – and a time to let go if the problem is incurable and there will be no quality of life even if the event is survivable. Holding on too long when there’s no hope can be pure hell, and letting go the only way a space can be opened for grace and peace to find its way through. So sorry this is happening to you and your mom.

      Liked by 1 person

      • Thank you so much for your thoughtful reply. My mom is better now and us regained her speech. She said if it ever happens again and she does not regain her speech, she does not want to live. I am at peace with that.

        Liked by 1 person

      • That is awesome. I’m so glad to hear your mom is recovering. Someone very close to me died of a stroke at only 52. She didn’t control her stress level or take her blood pressure medication regularly. I hope your mom takes care of herself. Wishing you both good health and happiness.

        Liked by 1 person

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